hrp0097p1-446 | Fat, Metabolism and Obesity | ESPE2023

The evolution of diagnosis and care over time in children with Prader-Willi syndrome, born between 2005 and 2021, included in the French database.

Faye Sandy , Molinas Catherine , Brochado Cathy , Valette Marion , Desprez Clémence , Diene Gwenaelle , Arnaud Catherine , Tauber Maithé

Introduction: The French Reference Centre PRADORT set up a national Access® database in 2005 for children diagnosed with Prader-Willi Syndrome (PWS). The medical, socio-demographic and family data of 813 patients were then collected.Method: We aim to analyse the evolution of diagnosis and care over time, according to the birth year of patients by comparing 3 groups (patients born between 2005 to 2009, 2010 to 2014 an...